https://therareremix.com/articles daily 0.75 2026-07-26 https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/06605638-ed2b-48ba-8dbd-76642cd57a2a/Podcast+Round+Icon.png https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/9f259b19-8f19-4064-a349-7ca0f4e38556/Sponsor+Round+Icon.png https://therareremix.com/articles/back-to-school-resources-for-rett-syndrome monthly 0.5 2026-07-26 https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/1785025608540-8R1JPNHY8FRL1MPLM2IO/unsplash-image-l3N9Q27zULw.jpg Articles - Back-to-School Resources for Rett Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/11b7adb0-e12c-4a04-8a8e-dee75cc11bde/What+is+Rett+Syndrome%3F Articles - Back-to-School Resources for Rett Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/d14b5311-d93a-433e-b2ed-7c919f4eee07/Communication+Log Articles - Back-to-School Resources for Rett Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/2956a2b0-3536-41b7-99c5-b0f01f06ac78/AboutMe.pdf.png Articles - Back-to-School Resources for Rett Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/c14684ef-9b0d-443c-ab95-849c3a750eaa/Thisismyvoice.webp Articles - Back-to-School Resources for Rett Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/1784981833639-P1DARY71TN24VHP6E0X5/unsplash-image-bI59mOupMYE.jpg Articles - Back-to-School Resources for Rett Syndrome - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://therareremix.com/articles/socialgamesandaacforeyegazeusers monthly 0.5 2026-07-24 https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/0e8f872e-885f-419e-b446-70d9f08245f3/TicTacToe.png Articles - Social Games & AAC for Eye Gaze Users - Make it stand out Create a simple Tic Tac Toe board on your device and turn the live gaze “on” for the eye gaze user to make their move. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/7926d4b1-d7f4-4913-9388-f0a25ffd6afc/Would+you+rather+eye+gaze+game.jpg Articles - Social Games & AAC for Eye Gaze Users - Make it stand out Sample card sheet to create for “Would You Rather…”? Print and cut out pairs for one person to hold up for the eye gazer. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/0be70b7c-f89f-48bd-8cfa-73cc4dc43b4a/Sunshine+says+eye+gaze+game.jpg Articles - Social Games & AAC for Eye Gaze Users - Make it stand out Let the eye-gazer take control as they instruct players what to do in this summertime rendition of “Simon Says”. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/765c64d7-288a-420f-9118-fe8e46c7ac98/Go+Fish.jpg Articles - Social Games & AAC for Eye Gaze Users - Make it stand out Creating a “Go Fish” page for an eye gazer brings them into the game and encourages number recognition and fun sportsmanship. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/cbb5750c-058a-4133-be32-e3c5a35ba82c/GoFishEyeGaze.jpg Articles - Social Games & AAC for Eye Gaze Users - Make it stand out Card holders can provide additional support for players needing fine motor assistance. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/d38dbe08-5b54-4683-bfdd-0086b44a8b55/Kerplunk_4829.jpeg Articles - Social Games & AAC for Eye Gaze Users - Make it stand out An adapted version of KerPlunk for eye gaze users without using tech. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/2e299000-8a59-44af-b973-c563a5cc34f0/IMG_4922.jpeg Articles - Social Games & AAC for Eye Gaze Users - Make it stand out Guess Who? can help communication partners model common language, like animal homes or body parts, while engaging with eye gazers. https://therareremix.com/articles/au-kline-syndrome-a-conversation-with-dianne monthly 0.5 2026-07-09 https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/81cc524a-0af3-4837-9bf0-7c5777a6d208/therareremixdruauklineraredeseasesyndrome.jpeg.jpg Articles - Au-Kline Syndrome: A Conversation with Dianne - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://therareremix.com/articles/rett-syndrome-a-conversation-with-karen monthly 0.5 2026-06-29 https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/7c190ab7-0f55-4ce2-8acf-24d6f36713d5/IMG_4786.jpeg Articles - Rett Syndrome: A Conversation with Karen - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://therareremix.com/articles/how-we-optimize-ai-to-manage-our-rare-life-remix monthly 0.5 2026-06-29 https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/9d3e6818-9fed-4464-87de-dcf659290aea/The+Rare+Remix+Figure+1.+A+simplified+family-facing+map+of+Indiana+Medicaid+and+the+major+BDS+waiver+lanes%2C+with+our+daughter%E2%80%99s+H%26W+lane+highlighted..png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 1. A simplified family-facing map of Indiana Medicaid and the major BDS waiver lanes, with our daughter’s H&W lane highlighted. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/840fde88-2eae-4ed6-89b0-f4b44c93cec2/The+Rare+Remix+Figure+2.+One+family%E2%80%99s+support+lane%2C+using+first+names+and+generic+provider+categories+rather+than+company+names.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 2. One family’s support lane, using first names and generic provider categories rather than company names. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/0c3acba0-84e9-43a2-af69-e9dcdc6f7a7d/Figure+3.+A+%E2%80%9Cwho+does+what%E2%80%9D+map+that+keeps+the+child%E2%80%94not+the+paperwork%E2%80%94at+the+center.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 3. A “who does what” map that keeps the child—not the paperwork—at the center. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/962e97e1-508d-44a5-8955-b4d9d14e495f/Figure+4.+A+plain-English+glossary+for+the+Indiana+waiver+terms+that+appear+most+often+in+our+family%E2%80%99s+conversations.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 4. A plain-English glossary for the Indiana waiver terms that appear most often in our family’s conversations. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/c4b2863a-528c-451b-be51-1c91d16734bd/Figure+5.+A+practical+insurance-appeal+path%2C+from+the+denial+notice+to+the+next+available+review+right.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 5. A practical insurance-appeal path, from the denial notice to the next available review right. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/0434ee8b-8c05-4bd5-8d6f-26d301f1bf01/Figure+6.+The+six+connections+a+strong+Letter+of+Medical+Necessity+usually+needs+to+make.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 6. The six connections a strong Letter of Medical Necessity usually needs to make. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/3b80bc7f-29ee-41d8-873f-a6cd695bffb5/Figure+7.+A+before-during-after-follow-through+loop+for+medical+appointments.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 7. A before-during-after-follow-through loop for medical appointments. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/a37e6a50-2941-4e37-9b4b-5bdf49f1b8d1/Figure+8.+An+estate-planning+conversation+map+that+includes+the+human+details+alongside+the+legal+and+financial+ones.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 8. An estate-planning conversation map that includes the human details alongside the legal and financial ones. https://images.squarespace-cdn.com/content/v1/6a1b7234c60aa86453d46849/50e89ee4-ff20-4f09-b2a4-23fc9d28c935/Figure+9.+A+family-centered+resource+map+for+comparing+costs%2C+timing%2C+deadlines%2C+risk+and+flexibility.png Articles - How We Optimize AI to Manage Our Rare Life Remix - Make it stand out Figure 9. 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