THE RARE REMIX PODCAST
Connecting people with ideas and solutions.
Listen in as families, experts, advocates, and caregivers share the lessons they've learned along the way.
START LISTENING HERE
New to The Rare Remix? Start here. Listen to insightful stories from podcast guests or browse a blog post curated by experience to help you find a potential solution for your family. Let’s learn, adapt, and thrive together.
Get to Know Our Family & Story
Begin with Episode 01 and hear how it all started, and how we got to where we are today.
Most Helpful for New Diagnosis
The essential episodes for families who are navigating a life-changing diagnosis.
Most Helpful for Systems Support
Check out episodes that touch on school, IEPs, medicaid, waivers, advocacy and more.
BROWSE BY TOPIC
LATEST EPISODES
Search by keyword or browse the full episode archive.
Episode Archive
Episode 02 - Rett Syndrome: A Conversation with Karen
In Episode 2, we sit down with Karen, a mother whose daughter Lynzie was diagnosed with Rett syndrome in 1999. Karen shares her family's journey through diagnosis, advocacy, respite care, and the challenges of planning for independence. From annual cruises and hard-won milestones to finding support before the days of social media, this conversation is filled with wisdom, honesty, and hope for families navigating life with a rare disease.
Have a Story to Share?
We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
Partner with The Rare Remix
Partner with The Rare Remix to support families navigating rare disease and disability while reaching a highly engaged audience that values authenticity.