THE RARE REMIX PODCAST
Connecting people with ideas and solutions.
Listen in as families, experts, advocates, and caregivers share the lessons they've learned along the way.
START LISTENING HERE
New to The Rare Remix? Start here. Listen to insightful stories from podcast guests or browse a blog post curated by experience to help you find a potential solution for your family. Let’s learn, adapt, and thrive together.
Get to Know Our Family & Story
Begin with Episode 01 and hear how it all started, and how we got to where we are today.
Most Helpful for New Diagnosis
The essential episodes for families who are navigating a life-changing diagnosis.
Most Helpful for Systems Support
Check out episodes that touch on school, IEPs, medicaid, waivers, advocacy and more.
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Episode Archive
Episode 01 - Introducing The Rare Remix Podcast
In the first episode of The Rare Remix Podcast, we're sharing our story. You'll learn about Ava's Rett Syndrome diagnosis, how our lives changed overnight, and the journey that inspired us to create Rare Remix. We discuss the challenges, lessons, and unexpected blessings we've experienced along the way, and why we're passionate about helping other families feel informed, supported, and less alone.
Have a Story to Share?
We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
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