You're Not The Only One Figuring This Out.
THE RARE REMIX PODCAST
Listen in as families, experts, advocates, and caregivers share the lessons they've learned along the way.
START LISTENING HERE
New to The Rare Remix? These episodes are the best place to begin. Hear our story, learn what the podcast is about, and find conversations that help you feel less alone.
Get to Know Our Family & Story
Begin with Episode 01 and hear how it all started, and how we got to where we are today.
LISTEN NOW →
Most Helpful for New Diagnosis
Check out this essential episode for families who are navigating a life-changing diagnosis.
LISTEN NOW →
Most Helpful for Systems & Support
This episode touches on school, IEPs, medicaid, waivers, advocacy, and a whole lot more.
LISTEN NOW →
BROWSE BY TOPIC
Episode 04:
In the first episode of The Rare Remix Podcast, we're sharing our story. You'll learn about Ava's Rett Syndrome diagnosis, how our lives changed overnight, and the journey that inspired us to create Rare Remix. We discuss the challenges, lessons, and unexpected blessings we've experienced along the way, and why we're passionate about helping other families feel informed, supported, and less alone.
Episode 03:
In the first episode of The Rare Remix Podcast, we're sharing our story. You'll learn about Ava's Rett Syndrome diagnosis, how our lives changed overnight, and the journey that inspired us to create Rare Remix. We discuss the challenges, lessons, and unexpected blessings we've experienced along the way, and why we're passionate about helping other families feel informed, supported, and less alone.
Episode 02:
In the first episode of The Rare Remix Podcast, we're sharing our story. You'll learn about Ava's Rett Syndrome diagnosis, how our lives changed overnight, and the journey that inspired us to create Rare Remix. We discuss the challenges, lessons, and unexpected blessings we've experienced along the way, and why we're passionate about helping other families feel informed, supported, and less alone.
Episode 01: Introducing The Rare Remix Podcast
In the first episode of The Rare Remix Podcast, we're sharing our story. You'll learn about Ava's Rett Syndrome diagnosis, how our lives changed overnight, and the journey that inspired us to create Rare Remix. We discuss the challenges, lessons, and unexpected blessings we've experienced along the way, and why we're passionate about helping other families feel informed, supported, and less alone.
Have a Story to Share?
We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
Partner with The Rare Remix
Partner with The Rare Remix to support families navigating rare disease and disability while reaching a highly engaged audience that values authenticity.