THE RARE REMIX PODCAST
Connecting people with ideas and solutions.
Listen in as families, experts, advocates, and caregivers share the lessons they've learned along the way.
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New to The Rare Remix? Start here. Listen to insightful stories from podcast guests or browse a blog post curated by experience to help you find a potential solution for your family. Let’s learn, adapt, and thrive together.
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Begin with Episode 01 and hear how it all started, and how we got to where we are today.
Most Helpful for New Diagnosis
The essential episodes for families who are navigating a life-changing diagnosis.
Most Helpful for Systems Support
Check out episodes that touch on school, IEPs, medicaid, waivers, advocacy and more.
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Episode Archive
Episode 05 - Rett Syndrome, Mobility & Caregiving: A Conversation with Allison and Brendan
In Episode 5, Allison and Brendan share about their life with their daughters, Anya and Clare. Clare was diagnosed with Rett syndrome just as the world shut down in 2020 for COVID. From the less-visible demands of raising a mobile child with complex needs to Allison's powerful distinction between “momming” and caregiving, their story reminds us that everyone has their own version of hard.
Episode 04 - Communication & Education: A Conversation with Susan Norwell and Kourtney Barnum
In Episode 4, we sit down with Susan Norwell and Kourtney Barnum from Rett University to explore the transformative world of Augmentative and Alternative Communication (AAC).
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We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
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