You're Not The Only One Figuring This Out.
THE RARE REMIX PODCAST
Listen in as families, experts, advocates, and caregivers share the lessons they've learned along the way.
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New to The Rare Remix? These episodes are the best place to begin. Hear our story, learn what the podcast is about, and find conversations that help you feel less alone.
Get to Know Our Family & Story
Begin with Episode 01 and hear how it all started, and how we got to where we are today.
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Most Helpful for New Diagnosis
Check out this essential episode for families who are navigating a life-changing diagnosis.
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Most Helpful for Systems & Support
This episode touches on school, IEPs, medicaid, waivers, advocacy, and a whole lot more.
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LATEST EPISODES
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Episode 03: Making Home Feel Possible: Creating Accessible Spaces for Everyday Life
For many families, home modifications aren't about convenience. They're about safety, independence, dignity, and quality of life. In this episode, we explore the realities of home accessibility, from simple adaptations to major renovations, and discuss how families can create spaces that better support the unique needs of their loved ones.
Have a Story to Share?
We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
Partner with The Rare Remix
Partner with The Rare Remix to support families navigating rare disease and disability while reaching a highly engaged audience that values authenticity.