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Practical Support for the Road You Didn’t Expect.
Explore honest stories, helpful resources, and real-life guidance for families navigating rare disease, disability, caregiving, advocacy, and life after diagnosis.
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Back-to-School Resources for Rett Syndrome
For many families, the start of a new school year is filled with excitement. Fresh school supplies, new teachers, and the promise of new friendships make it a season of anticipation.
For families of children with Rett syndrome, however, back-to-school often brings a very different set of emotions and challenges.
We’re here to help.
Social Games & AAC for Eye Gaze Users
Social games can be a great way for an eye gaze user to engage with their peers. All it takes is a little creativity and the willingness to do things a little different.
Have a Story to Share?
We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
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