THE RARE REMIX ARTICLES
Practical Support for the Road You Didn’t Expect.
Explore honest stories, helpful resources, and real-life guidance for families navigating rare disease, disability, caregiving, advocacy, and life after diagnosis.
BROWSE BY TOPIC
LATEST ARTICLES
Search by keyword or browse the full article archive.
Back-to-School Resources for Rett Syndrome
For many families, the start of a new school year is filled with excitement. Fresh school supplies, new teachers, and the promise of new friendships make it a season of anticipation.
For families of children with Rett syndrome, however, back-to-school often brings a very different set of emotions and challenges.
We’re here to help.
Social Games & AAC for Eye Gaze Users
Social games can be a great way for an eye gaze user to engage with their peers. All it takes is a little creativity and the willingness to do things a little different.
Au-Kline Syndrome: A Conversation with Dianne
In Episode 3, Dianne shares how her daughter Dru’s ultra-rare Au-Kline syndrome diagnosis led their family to community, advocacy, early specialist care, and AAC, reminding us that rare families often learn, adapt, and advocate together.
How We Optimize AI to Manage Our Rare Life Remix
From Medicaid maps to insurance appeals, appointment follow-up and planning for the future, we use AI to make complicated work more manageable—without handing over human decisions.
Have a Story to Share?
We’re always looking for parents, caregivers, advocates, medical professionals, and disability community leaders with honest stories and helpful insight to share.
Partner with The Rare Remix
Partner with The Rare Remix to support families navigating rare disease and disability while reaching a highly engaged audience that values authenticity.